On “zentangling”, life, and God

I haven’t written anything new over the last few days (though there are many thoughts I’m itching to get on paper), because I’ve been…doodling. A lot.

Apparently, this type of detail-oriented (or should I say “obsessed”?) and geometric doodling has a name — it’s called a “zentangle”. I would not have known this if my colleague hadn’t passed me a Zentangle workbook to pass to Omari, my student who’s currently in the hospital.

Annie the Antisocial Anteater

Camille the Capricious Camel

Malcolm the Maladjusted Meerkat

I am hooked, and think I may have figured out the appeal of zengtangling. It’s a lot like life — you can’t erase any of the strokes you’ve made, but you can adapt and build off from those accidents, misfortunes, and mistakes. In the moment, every detail seems random and incongruous with everything else, but at the end of the day you find yourself with a final tapestry much more complex and beautiful than what you could have dreamed up at the beginning.

And it reminds me very much of God’s continuing work in my life and yours. In the words of a very wise priest, God is a skillful impressionist painter — his work can make little to no sense up close, but when you step back you see a masterpiece.

This has been fun and therapeutic for me, but I also connect deeply to the idea of characters who are so fixated with a certain trait that they forget there’s so much more beauty and complexity to them. I’ve seen it in myself, in people struggling with mental illnesses, in my students, and in how people view those who have special needs.

I’m now thinking of putting them on sale as prints/T-shirts/tote bags/iPhone skins on Society6. What do you think?

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Depression taught me to love the developmentally disabled

The title of this post was originally going to be “How I came to empathize with the developmentally disabled”. Then I realized I had no right to use the word “empathize”, because I have never walked a day in their shoes, and will never fully empathize. But I’m writing this because I believe my depression offered me a small window into the world of those who know they are different from the majority, those who feel incapable of fully participating in society. My last two cycles of clinical depression taught me to have compassion for those for whom such struggles are part of an inescapable reality.

Depression affects everyone differently. A recurring theme for me is being robbed of many cognitive, social, and emotional abilities. While I haven’t figured out how much of it is real, and how much simply a matter of distorted perception, it all seemed to me like an objective, permanent reality (and there was no talking me out of it — just ask my therapist, my family, my then-boyfriend, and my close friends).

I distinctly remember what it was like being at a friend’s 21st birthday party. I excused myself to go to the bathroom many more times than necessary, all to avoid having to converse with another person. I don’t know how to hold a conversation. I wouldn’t know how to respond and react appropriately. All it would take is one sentence or one stammer and I’d be exposed. They would know I’m a freak. And then they would either walk away, or at best they might stay out of pity.

At the dinner table, I freaked out when an academic asked me what I was majoring in in college. I knew that the moment I said Sociology, he would follow up with a question that would expose my ignorance and my failure to understand my own discipline. And I dreaded how everyone at the party would inevitably ask, “Where do you go to school?” Because I knew what they’d expect when I told them I went to the University of Chicago. They’d expect me to be intelligent and insightful, and I would hopelessly fall short. I didn’t even dare to talk to the little children at the party, believing that I would be looked down upon even by those a whole decade younger than me.

There was one partygoer different from everybody else, an elderly lady with Down Syndrome. I quietly watched how she stared into space most of the time, and how her relatives coaxed her into standing in the right place when the time came to take a group picture. I felt a profound sense of affinity with her. Though I wasn’t sure how aware she was of her own disability, I yearned to commiserate with her. It’s okay, I don’t belong here either. I don’t know what these people are talking about either. I don’t know why they’re enjoying themselves either. This world is a strange and scary place. 

It wasn’t just in public. I found this picture of me (in green) and my sisters watching Midnight In Paris at my apartment.

You can’t tell from looking at the picture, but while my sisters both loved the movie (as do most who’ve seen it), to me it was torture. I couldn’t really pay attention to the plot or dialogue — I was too busy feeling tortured about not being able to identify with the thoughts, motivations, and emotions of the characters in the film. The credits rolled and I had no idea what the movie was about.

And here’s a picture taken on graduation day.

It’s an iteration of classic goofy shot I often took with my friends. Except this time, it wasn’t funny to me because all I could think of was how I would ever justify being a UChicago graduate when I was so “dumb”, when I could function neither in the classroom nor in the real world, when I believed my life was “over” because I’d never be able to get/hold a job or start a family in the future. Not long after this picture was taken, I began going around saying my goodbyes as if I’d never see many of these people ever again, as I was planning to go into reclusion for good.

And as I come out of depression, as my mental agility, emotional energy, and ability to relate to other people are coming back, I haven’t been able to forget how lonely and out of place I felt all those months. Those feelings of not belonging in the world, of not being able to live up to the expectations of society, of being defective in every way, of being a mistake amidst all of God’s perfect creations, will always remain fresh in me.

And this is the story of how God humbled me, and instilled in me new and deep love and compassion for those labeled by society as “defective”, or “different” at best. I invite you to reflect on how you’ve perceived or treated our brothers and sisters who don’t meet the constructed, arbitrary standards of beauty, success, and normalcy.

If you personally know what it’s like to have a developmental disability of any kind, or if you know someone who does, I would be honored to hear about and learn from your experiences.

Related post: Those with “special needs” can teach us a thing or two about humanity

What we can learn from those with “special needs”

As an aspiring special education teacher, I wanted to learn how to interact with kids with more profound developmental disabilities. I found KEEN, a nonprofit that pairs volunteers with special needs participants (kids and young adults) in a time of free play. I started two weeks ago; as it turns out, there wasn’t much to learn at all — though there was much to unlearn.

My buddy, Charles, is an African-American male in his 20s. He was born with Down syndrome. Because of his intellectual disability, he behaves like a young child. Charles often repeats himself, his favorite lines being “How you doing?” and “What color is this?” Charles is also incredibly friendly, and would shake hands with anyone he meets. Sometimes, he might pick up your hand and sniff it (it’s his way of showing affection), which tends to startle people meeting him for the first time. He loves shooting hoops, which I happen to be terrible at, and thankfully doesn’t bother him.

When I first met Charles, I was keenly aware that under “normal” circumstances, we would unlikely be friends. Charles and I have close to nothing in common — not gender, not race, not age, not occupation, not skills, not interests. But it quickly became so clear to me that we have one very important thing in common — we’re both God’s children.

There is unparalleled beauty in simple interactions. When I talk to Charles and other participants at KEEN, there is absolutely no pretense. There’s no need to be smart, or witty, or funny, or interesting. No judgment, no expectations. Simply put, these are interactions in the purest form. No one’s trying to impress anybody, and no one’s trying to gain anything from anybody. I felt freedom.

Occasionally, I take a step back to just marvel at what’s going on in this basketball court, and I realize that this is an oasis in a clockwork society that expects so much of every individual.

One time, Charles wanted to take a walk outside of the basketball court, so I took his hand and we ventured out for 5 minutes, during which we ran into a few college students. Charles being Charles, promptly walked up to them and asked for all their names, before shaking and sniffing their hands. I was enraged by the grimaces and general discomfort plastered all over their faces. That was the moment I realized the extent to which we’ve created a society so hostile to those who are “different”. It’s no surprise that we’re seeing more and more “wrongful birth” lawsuits filed by parents who declare that they would have aborted their baby if they’d known he/she would be different. And then we have the likes of Richard Dawkins who’d go so far as to say that “immoral” not to abort unborn babies with Down Syndrome.

I, too, am guilty of perpetuating an elitist, ableist world. For four years, I immersed myself in the intellectual bubble that is The University of Chicago. There, I learned life-changing critical thinking skills that I am incredibly thankful for. Unfortunately, it also instilled in me a poisonous pride in my ability to engage in “intellectual” conversations, and hence a preference for a certain type of interaction. It took a major bout of depression that robbed me of many of my cognitive abilities for me to be humbled once more.

I love the work organizations like KEEN does, but it saddens me that we actually need to recruit volunteers to fulfill social and emotional needs that wonderful people like Charles are often deprived of.

I encourage you to try spending some time with people like Charles. They will always teach and remind us about what it means to be fellow human beings, and it will be good for our souls.

Charles gave me a slip of paper with his name on it so I wouldn’t forget him over the course of the week.

At that time the disciples came to Jesus and said, “Who then is greatest in the kingdom of heaven?” And He called a child to Himself and set him before them, and said, “Truly I say to you, unless you become like children, you will not enter the kingdom of heaven. “Whoever then humbles himself as this child, he is the greatest in the kingdom of heaven.”
(Matthew 18:1-4)

 

Also published on The Mighty.

 

Life isn’t what you make it

As much as we’re told that “life is what you make it”, that phrase could not be farther from the truth. The present life we’re living, wherever we’re reading this right now, is collectively made possible by our parents, teachers, friends, neighbors, bosses, doctors, firefighters, law enforcers, lawmakers, ancestors, founding fathers…..and lastly, ourselves.

Nothing apart from the decisions we make is inherently, wholly ours.

First and foremost, we’re alive today because we were each given a shot at life. We had the support of individuals (biologically related or not), groups, communities, and/or institutions that believed that we — though weak, voiceless, defenseless, even useless — were of value and had rights as members of a just and humane society.

We were cared for, taught the ways of survival, of weathering storms, of overcoming obstacles, defying odds, of discovering and pursuing our passions, until we’re ready to take those training wheels off. We then embraced the independence to carve out our own lives, and the freedom to do as we please. But never at the expense of others, because we remember to love and respect the way we were loved and respected for simply being human. We give others a chance to find their way the way we were given chance after chance.

Let’s consider our own profound indebtedness before we  make judgments about whether someone would be worthy recipient of society’s resources, or make assumptions about whether someone would be able to live a fulfilling life. If one is given the resources that will enable them to overcome and flourish, they will.

The greatest of these resources are love and respect, and the most basic of these is a chance at life. And when they no longer need their training wheels, they will pass them on to those who do. May this be the kind of society, the kind of human race we are proud to be members of.

“Either life is always and in all circumstances sacred, or intrinsically of no account; it is inconceivable that it should be in some cases the one, and in some the other.”   –Malcolm Muggeridge

Are you prepared to love?

Meet the Dennehys. This has got to be the most beautiful family in the world. Just seeing how much the adoptive parents’ love empowered and enabled these kids, I don’t think you could even call them “disabled” anymore.

Lately I’ve been thinking (and talking, and arguing..) a lot about what it means to be pro-life. Which involves knowing why you genuinely oppose  pro-abortion (I don’t like the term “pro-choice” — it attempts to shroud and sugarcoat the ugly truth) arguments. I honestly believe that the pro-abortion movement in modern, prosperous America is all about self-centredness. In particular the labelling of abortion as a constitutional “right” — it reeks of individualism (that discriminates the defenseless unborn). It’s about living and running a self-centric universe. It’s the American dream, of doing whatever it takes to get to where you want to be, stretched to disgusting proportions. But what about the argument that it’s for the child’s good, to spare him/her of a life with deformities/disabilities? Altruistic, is it not?

This video gave me another powerful insight into this question. Can anyone watch this and honestly say, “Those poor, miserable kids!”?

One big reason a woman would assume her deformed baby would grow up to be miserable, is because she herself would give the child a miserable life. She’s not prepared to love unconditionally, to love in a way that would enable a victorious life. When expectant parents say, “I don’t want them to be miserable,” is, what they really mean, whether they realize it or not, is “I don’t want me to be miserable.” There, self-centred.

Also watch little Ace Eicher tell the world about her brother with Down syndome, and weep. :’)